WebThe voice for the CDKL5 community in the UK. CDKL5 UK is a charity run by parents caring for a child with CDKL5 deficiency disorder. We fully understand the challenges … WebCDKL5 UK Charity that provides information and resources for those affected by CDKL5 disorder. Charcot-Marie-Tooth UK Chraity that supports people affected by Charcot-Marie-tooth disease. CHARGE Family Support Group Support group that provides a supportive network for people with CHARGE syndrome and their families. ChILD Lung Foundation

CDKL5 Forum

http://www.supporting-cdkl5.co.uk/resources/CDKL5%20Booklet-Professional.pdf Weba CDKL5 Disorder Registered Charity No. 1149099. CDKL5 UK. Foreword In the decade since gene changes in CDKL5 were fi rst linked to Rett syndrome, much has been learnt about the CDKL5 disorder. ... Hospital, Cardiff, UK. CDKL5: A Guide for Professionals / 2 CDKL5 UK, 5 Thorne Lane, Yeovil, Somerset, BA21 3LU UK Email: … glass etched beer mugs etsy

CDKL5 Disorder - Supporting CDKL5

WebHi, my name is Aaliyah Knip, and I am running the 5k run in Reigate to support CDKL5 UK and Momentum Children's Charity. I am raising money for CDKL5 UK because it is a rare genetic disorder, and unfortunately, my sister was diagnosed with CDKL5 when she was one year old. Also, CDKL5 contains epilepsy and severely delayed development. WebCDKL5 UK is a UK based charity that has been set up to raise awareness and vital funds for the global research effort. The trustees of CDKL5 UK are made up of parents living … WebRare Disease Collaborative Network (RDCN) for CDKL5 Bristol Royal Hospital for Children : ... Brain Charity : CDKL5 UK : Epilepsy Action : Epilepsy Society : Findacure : Gene People : Genetic Alliance UK : Neurological Alliance : South Asian Health Foundation : Specialised Healthcare Alliance : Young Epilepsy: Professional groups: Association ... glassetched folie